What is hydrocephalus? What are the symptoms? What scans are necessary? What is the treatment? Video Rating: four / five
I call this the the 'waiting room' which is the Hydrocephalus ward at Go Vap orphanage for the terminally ill young children. For these small ones it's too late as an operation is too pricey & complex. Even so, if they are operated on early and supplied with shunts for the procedure they have a opportunity of survival & a regular existance. Hospitals in the UK & US throw away expired shunts, but the Dr's have been making use of them over here and the operations are effective. When I return to the UK, I will do a lot more study & will contact hospitals & manufacturers to see if they will donate any expired shunts. 15.08.2010 Update: Given that I took this video, small Phuc passed away in 2008.... I am so sad of Phuc's passing but know there will be no far more discomfort for the little 1... Treatment to remove water on the brain (hydrocephalus) can now be performed without a shunt, nonetheless diagnosing the hydrocephalus condition in time still wants to be improved. If you are a Doctor or a nurse & would like to volunteer in Vietnam, please contact me. For the kids where it is too late to operate on, they need enjoy & care too. The staff do all they can to feed & keep the children clean, nonetheless we are also looking for volunteers who will invest some time with these children just before they die, gently massaging, caring & talking to them. All young children really should have the right to be loved & cared for before they die. Your assist is sorely needed! Kim Nguyen Browne Founder Vietnam Volunteer Network knb ... Video Rating: 4 / five
And the brain to swell up beyond normal proportions normal to the human body. Could that cause developmental delays, with all that pressure in the brain?
I developed hydrocephalus after a bout of meningitis in 1993. Due to austerity pressure by the French government my doctor didn't dare prescribe an MRI and my condition was misdiagnosed for years. By the time it was discovered the socialized "medical mafia" here in France considered me a lost cause and denied me any genuine treatment. I'm an invalid now and expect to die soon. I write this to warn against socialized medicine. It's like letting the tax-people make all your medical decisions.
@imowtflol Hey!! The doctors should have thought about that test when I was little but instead I went through 8 years of operations and excruciating headaches. I don't really enjoy sitting in front of radiators much to be honest, I prefer to run marathon's, 8 marathons as a matter of fact! How many have you run with your non "mong" body? I'm gonna presume none, as if you had the determination and drive to get of your arse and run you wouldn't be such an arrogant fool.
@Ashlee198522 Thats good, Im sure he is an awesome person, as most people with Hydro. are. My mom died of breast cancer when I was 9, thats why Im worried about my future in life and possible surgeries. I used to share my feelings with her and now I really need to, but I cant talk to her anymore. I hate being 17, Im growing up too fast.
@coastermusic93 and try to be there just to support him. I wouldn't wanna anyone to be that freaked out. and i'am sure he feels that way to, freaked out...
@coastermusic93 O wow I'am sorry for that. Yeah don't worry I will and have taken as much care as possiable i couldn't seem to get much from him about this Hydrocephalus but his family would tell me whats up and i get on him about things that i know would give him a head ach or had one, like he likes to drink so i tell him you know what happened the last time, lol he like yeah. But i try to be there and i live in irvine, ca he lives in san deigo, so i'd be there in a heart beat to go see him.
my girlfriend has this condition she is visually impaired which i dont know if blindness is part of it or not. she didn't tell me about it until recently for some reason dont know why whether it was shyness or worry about how i would react ot her but we have now been together for 3 months and we never talk about it she just gets on with things and for the most parts lives a normal life. i found out after i made a joke about us going abroad for a holiday she then told me she couldn't fly
@Ashlee198522 LOL, make sure to always be there for him in case he has problems with it. Cause, Im 17, and right now Im pretty scared. I have had my shunt for 17 years, and Im worried that its worn out. I've been getting a lot of headaches lately so Im freaked out. I havent had any additional surgeries like most people have. But when I try to talk about it with my girlfriend when Im worried, she says, "thats gross". :(
My baby bone with Meningomyelocele and opreated on next day. Now he is 2 month old and suffering with the Hydrocephalus and also from Meningitis his treatement is going on and he is admitted in hospital
@Ashlee198522 I have one, and its a silicone/plastic tube. It goes from a space in the middle of your brain and drains fluid in it, then moves the the fluid down to your stomach (adomen or whatever).
good, info. I have a fiance and been with him for a few years and i knew he had something wrong with him but he didn't tell me what the name of it was till lately, which was the Hydrocephalus and he had tubes in his neck going down to his stomache cause of the surgurys. Is that also what happens? and if so why do they have thoses tube what are they for exactly?
@KimDreamVietnam I know it probably sounds ignorant, and I don't mean to be, but do the kids get any exercise or massages to stimulate muscle development even though they're dying? Would such measures be considered hopeless, given the condition these kids are in?
of course it's sad seeing this children that have no other way of communicating by crys seeing them in pain is hard but yeah i kind of wanted to no why you were speaking that way sorry
@KimDreamVietnam Thank you for caring! Hydro means water in Greek but it's not literal... Getting the wod out is more important than that little word. :)
@KSitz77 Hi & in answer to your question yes they can lead normal lives after a successful operation. Check out this video I took of a little boy at Go Vap who was operated on without a shunt 'Caution: Volunteering In Vietnam At Go Vap Orphanage Can Touch Your Heart & Help Others Too!'
@julianaestefany Really, after watching this video you can only post that as a question? Perhaps you should read my bio on YouTube which may explain why I speak with a British accent.
@99boyz Sorry, are you from Japan? I filmed this in Vietnam. It also depends on when you get hydrocephalus & how big your head is, so if you did not have it as a baby but did as a teenager then I can understand you being operated on at 14. Glad you're ok though :o)
@KSitz77 Hi, I'm 31 and have hydrocephalus. I'm as normal as anybody! I've done alot of research and your friend's toddler might be a little delayed in learning but has every chance of being a normal child! Hope that helps...
@KimDreamVietnam Of course it CAN be different. Surely they can be breated better. I mean, I don't live the life of a king, I have my limitations and have had almost 30 shunt revisions, but these kids CAN have a semi decent life
@mydoggeez Hi, actually the ceilings have been painted with wonderful art for those kids. Please feel free to check my website or the Vietnam Volunteer Network Facebook for updates on the children at this orphanage.
Please, can we help paint this room with happy scenes? These poor babies are terminal and the least we could do is bring some color and teddybears to their lives.God bless them and there families.
Question: If these kids would have gotten the operation and its not too late can they learn to sit up and/or walk etc? I ask because I know a mom with a toddler who is 3 and has had the operation but is still lying flat. Also no vocabulary yet. Thanks for any insight.
Kim can you please give me the address of Go Vap orphan, I would love to come to visit them if I have a chance. I'll check back with you here to get the address, Thank you so much.
@destroyallnerds Oh dear, that was not what I wanted people to feel when I took this video. I hope from seeing this clip, you will look at it from another angle & live life to the full. Every time I go back to Vietnam & to my old orphanage (Go Vap), it is the children who teach me about life. They are so loving & giving despite their malformations, so have taught me to not only give back to them and to my enviroment & local community in London, but to also live life to the full.
Kim great work your doing god bless you.Your video of Go vap inspired me to visit an orpnage with my wife and 2 boys at Phu My in HCMC and have a ward the same as this soooo sad i was a grown man in tears.initially we were in shock but when you get to know them they are so affectionate just lack love.I made me and my family a better view and not selfish my 2 boys actually wanted to visit their friends and we end up visiting 3 time and spend his birthday there thanks for you video
hey, i had Hydrocephalus when i was born and i went to healing masses with my family and a priest held me and well.. god blessed me and cured me the next day when i had to get a scan i was normal i belive if i can go and see these children i may be able to heal them as i have before .
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And the brain to swell up beyond normal proportions normal to the human body. Could that cause developmental delays, with all that pressure in the brain?
ReplyDeleteWow it's an excess of spinal fluid building up in the middle brain which causes the middle venticle
ReplyDelete@Omega3chimp thats true....hydrocephalus doesnt have anything to do with disorders that affect intelligence.
ReplyDeleteI developed hydrocephalus after a bout of meningitis in 1993.
ReplyDeleteDue to austerity pressure by the French government my doctor didn't dare prescribe an MRI and my condition was misdiagnosed for years. By the time it was discovered the socialized "medical mafia" here in France considered me a lost cause and denied me any genuine treatment. I'm an invalid now and expect to die soon. I write this to warn against socialized medicine. It's like letting the tax-people make all your medical decisions.
thnks 4 d vid..kip up the gud wrk :)
ReplyDeletereally very good video!! it helped me understand ventricles of brain.. thank u guys!!
ReplyDeleteperfect,really perfect....
ReplyDelete@imowtflol Hey!! The doctors should have thought about that test when I was little but instead I went through 8 years of operations and excruciating headaches. I don't really enjoy sitting in front of radiators much to be honest, I prefer to run marathon's, 8 marathons as a matter of fact! How many have you run with your non "mong" body? I'm gonna presume none, as if you had the determination and drive to get of your arse and run you wouldn't be such an arrogant fool.
ReplyDeleteNeurologists have developed a new straightforward, low-cost home test for water on the brain.
ReplyDeleteYou just sit the mong kid in front of a radiator, and watch their ears for steam
cool video very educational
ReplyDeleteVALEU VÉI TÁ BELEZA BACARAI !!!!
ReplyDelete@Ashlee198522 Thats good, Im sure he is an awesome person, as most people with Hydro. are. My mom died of breast cancer when I was 9, thats why Im worried about my future in life and possible surgeries. I used to share my feelings with her and now I really need to, but I cant talk to her anymore. I hate being 17, Im growing up too fast.
ReplyDelete@coastermusic93 and try to be there just to support him. I wouldn't wanna anyone to be that freaked out. and i'am sure he feels that way to, freaked out...
ReplyDelete@coastermusic93 O wow I'am sorry for that. Yeah don't worry I will and have taken as much care as possiable i couldn't seem to get much from him about this Hydrocephalus but his family would tell me whats up and i get on him about things that i know would give him a head ach or had one, like he likes to drink so i tell him you know what happened the last time, lol he like yeah. But i try to be there and i live in irvine, ca he lives in san deigo, so i'd be there in a heart beat to go see him.
ReplyDeletemy girlfriend has this condition she is visually impaired which i dont know if blindness is part of it or not. she didn't tell me about it until recently for some reason dont know why whether it was shyness or worry about how i would react ot her but we have now been together for 3 months and we never talk about it she just gets on with things and for the most parts lives a normal life. i found out after i made a joke about us going abroad for a holiday she then told me she couldn't fly
ReplyDelete@Ashlee198522 LOL, make sure to always be there for him in case he has problems with it. Cause, Im 17, and right now Im pretty scared. I have had my shunt for 17 years, and Im worried that its worn out. I've been getting a lot of headaches lately so Im freaked out. I havent had any additional surgeries like most people have. But when I try to talk about it with my girlfriend when Im worried, she says, "thats gross". :(
ReplyDelete@coastermusic93 Oh, yeah thats it. thanks. He like Ice cream too. lol :)
ReplyDeleteMy baby bone with Meningomyelocele and opreated on next day. Now he is 2 month old and suffering with the Hydrocephalus and also from Meningitis his treatement is going on and he is admitted in hospital
ReplyDeleteCan anyone want to share his experiance.
Awesome video, you guys are very helpful. Keep up the great work.
ReplyDelete@Ashlee198522 I have one, and its a silicone/plastic tube. It goes from a space in the middle of your brain and drains fluid in it, then moves the the fluid down to your stomach (adomen or whatever).
ReplyDelete@Omega3chimp I have an above average IQ, so maybe.
ReplyDeletegood, info. I have a fiance and been with him for a few years and i knew he had something wrong with him but he didn't tell me what the name of it was till lately, which was the Hydrocephalus and he had tubes in his neck going down to his stomache cause of the surgurys. Is that also what happens? and if so why do they have thoses tube what are they for exactly?
ReplyDelete@coastermusic93 I have mine for 25 years no and no revision was needed or extension of it
ReplyDeleteim sooooo upst these poor chidren the pain they r suffering &they r jst left they need 2 b help i saw how much pain my boy wz in y cnt they b helped
ReplyDelete@KimDreamVietnam I know it probably sounds ignorant, and I don't mean to be, but do the kids get any exercise or massages to stimulate muscle development even though they're dying? Would such measures be considered hopeless, given the condition these kids are in?
ReplyDeleteBy best friend has this. :( and she needs to get her shunt replaced :((
ReplyDeletelol
ReplyDeleteof course it's sad seeing this children that have no other way of communicating by crys seeing them in pain is hard but yeah i kind of wanted to no why you were speaking that way sorry
ReplyDelete@KimDreamVietnam Thank you for caring! Hydro means water in Greek but it's not literal... Getting the wod out is more important than that little word. :)
ReplyDelete@KSitz77 Hi & in answer to your question yes they can lead normal lives after a successful operation. Check out this video I took of a little boy at Go Vap who was operated on without a shunt 'Caution: Volunteering In Vietnam At Go Vap Orphanage Can Touch Your Heart & Help Others Too!'
ReplyDelete@julianaestefany Really, after watching this video you can only post that as a question? Perhaps you should read my bio on YouTube which may explain why I speak with a British accent.
ReplyDelete@99boyz Sorry, are you from Japan? I filmed this in Vietnam. It also depends on when you get hydrocephalus & how big your head is, so if you did not have it as a baby but did as a teenager then I can understand you being operated on at 14. Glad you're ok though :o)
ReplyDelete@MrsMelanieC Thanks for the correction on my writing 'water on the brain' but that was taken in 2007 & the Dr had told me that in laymens terms.
ReplyDelete@KSitz77 Hi, I'm 31 and have hydrocephalus. I'm as normal as anybody! I've done alot of research and your friend's toddler might be a little delayed in learning but has every chance of being a normal child! Hope that helps...
ReplyDeleteIt's not "water" in our heads.It's cerebral spinal fluid (csf) not "water"
ReplyDeletehow is it to late i didn"t have my Surgery till i was 14
ReplyDeleteThen agian this is Japan
why does she have a british accent?
ReplyDelete@KimDreamVietnam Of course it CAN be different. Surely they can be breated better. I mean, I don't live the life of a king, I have my limitations and have had almost 30 shunt revisions, but these kids CAN have a semi decent life
ReplyDelete@mydoggeez Hi, actually the ceilings have been painted with wonderful art for those kids. Please feel free to check my website or the Vietnam Volunteer Network Facebook for updates on the children at this orphanage.
ReplyDeletePlease, can we help paint this room with happy scenes? These poor babies are terminal and the least we could do is bring some color and teddybears to their lives.God bless them and there families.
ReplyDeleteQuestion: If these kids would have gotten the operation and its not too late can they learn to sit up and/or walk etc? I ask because I know a mom with a toddler who is 3 and has had the operation but is still lying flat. Also no vocabulary yet. Thanks for any insight.
ReplyDeletethat nurse is HOTTTT
ReplyDeleteKim can you please give me the address of Go Vap orphan, I would love to come to visit them if I have a chance. I'll check back with you here to get the address, Thank you so much.
ReplyDelete@destroyallnerds Oh dear, that was not what I wanted people to feel when I took this video. I hope from seeing this clip, you will look at it from another angle & live life to the full. Every time I go back to Vietnam & to my old orphanage (Go Vap), it is the children who teach me about life. They are so loving & giving despite their malformations, so have taught me to not only give back to them and to my enviroment & local community in London, but to also live life to the full.
ReplyDeletethis makes me feel like i dont deserve life
ReplyDeleteKim great work your doing god bless you.Your video of Go vap inspired me to visit an orpnage with my wife and 2 boys at Phu My in HCMC and have a ward the same as this soooo sad i was a grown man in tears.initially we were in shock but when you get to know them they are so affectionate just lack love.I made me and my family a better view and not selfish my 2 boys actually wanted to visit their friends and we end up visiting 3 time and spend his birthday there thanks for you video
ReplyDeleteI work with a child like this. i love her dearly!
ReplyDeletehey, i had Hydrocephalus when i was born and i went to healing masses with my family and a priest held me and well.. god blessed me and cured me the next day when i had to get a scan i was normal i belive if i can go and see these children i may be able to heal them as i have before .
ReplyDelete